Ralph Sakkers's Contact Details

Ralph Sakkers's Company Details

Osteogenesis Imperfecta Federation Europe

Oslo, Oslo, Norway • 5 Employees
Health, Wellness & Fitness

The Osteogenesis Imperfecta Federation Europe (OIFE) is an umbrella association. Its membership consists of national and sub-national organisations which, in one way or another, support people living with the rare diagnosis Osteogenesis Imperfecta (OI). The OIFE was established in 1993 by six founding OI societies as a non-profit organisation and is registered as a charity in the Netherlands.Our goals are to: * Represent our members on an international level and be the voice of people with OI and their families* Grow an international network between professionals, organizations, individuals and other stakeholders* Advocate for access to competent healthcare and social support* Encourage scientific research on OI* Empower our members by sharing information, knowledge and best practices* Support development of OI organizations and local support in more countries* Guide individuals towards information, healthcare and support