The Scleroderma and Fibrotic Diseases Foundation
Nonprofit Organization Management - Honolulu, Hawaii, United States
The Scleroderma and Fibrotic Diseases Foundation Employees
The Scleroderma and Fibrotic Diseases Foundation Details
The Scleroderma and Fibrotic Diseases Foundation (The SFDF) was founded in 2019 by Cosette Wu after her grandfather passed away from systemic sclerosis. After witnessing her grandfather's battle with scleroderma, she felt empowered to address the lack of resources and support for people like him.Since then, The SFDF has become a registered 501(c)(3) nonprofit organization with over 30 team members in 15 states and 3 countries that aims to improve the lives of all people affected by scleroderma and fibrotic diseases on an international scale.In addition to directly helping those affected by scleroderma and other fibrotic diseases, The SFDF educates the broader community. We spread awareness with a goal of ensuring that more people can recognize the signs of scleroderma and realize the importance of research into scleroderma and other fibrotic diseases.Generally classified as an autoimmune rheumatic disease, scleroderma is a group of rare diseases that involve the tightening and hardening of the skin and connective tissues. In many patients, scleroderma harms structures beyond the skin, such as blood vessels, internal organs, and the digestive tract. Few effective treatments exist, and there is no cure.We recently released the first issue of Scleroderma Stories, a publication featuring the journeys of scleroderma warriors across the world. The first issue of Scleroderma Stories has reached over 3,900 people in 78 different countries. Read here: http://issuu.com/thesfdf/docs/sclero_issue_1__pages_
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