TOFS
Leisure/Hospitality - N/A, N/A, UK
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TOFS Details
Tracheo-Oesophageal Fistula Support ('TOFS') charity was set up in 1982 by parents of children born with TOF and associated conditions.As a charity we are dedicated to:• Offering free support to anyone who was born with OA/TOF and the people who care for them.• Raising awareness of the condition amongst health care professionals.• Funding, endorsing and encouraging research into the condition and its effectsWhat is OA/TOFOA/TOF is a rare congenital condition of the oesophagus (food pipe) and/or trachea (airway) that affects one in every 3,500 babies. Babies born with a Oesophageal Atresia (OA) and / or a Tracheo-Oesophageal Fistula (TOF) condition need to have intensive neo-natal care prior to corrective surgery, normally within days of birth.Whilst many children born with OA/TOF will experience only a few problems, others may have difficulties with swallowing and digesting food, Gastro-Oesophageal Reflux (where the acidic stomach contents pass back into the lower oesophagus) and respiratory problems. The effects of surgery and associated health problems may add a great deal to the usual challenges of parenthood.We are UK-based, have an office in Nottingham with a small team of staff, and receive no public-sector support at all. Registered charity number 327735.
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