MDS UK Patient Support Group
Nonprofit Organization Management - London, England, United Kingdom
MDS UK Patient Support Group Employees
MDS UK Patient Support Group Details
MDS UK is an advocacy and support group for those affected by Myelodysplastic Syndromes.We offer patient meetings with specialist speakers, distribute information, offer support, raise awareness of MDS with health professionals, politicians, health authorities.We lobby for access to treatment and take part in HTA's.Our committee members are either patients themselves - or relatives of patients.Current Chair: Edward PeelDeputy Chair: Russell CookCEO: Sophie WintrichImmediate past chair: Prof Rodney TaylorWe work with the UK MDS Forum, the UK specialists research group.We are a founding member of the MDS Alliance, the international umbrella group for all national MDS patient support groups. As such we participate in international haematology congresses such as the European Haematology Association (EHA), as well as American Society of Haematology congress.We are a privately funded organisation and rely on donations and grants from individuals and companies.If you are interested in helping us, please visit our Donations page on our website.We now have two twitter accounts to help promote our work - please follow us:@MDS_UK@HelpforMDSPlease use #mdssm Thank you
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